Help Sanford CoRDS at Sanford Health Foundation

Sanford CoRDS at Sanford Health Foundation

Sioux Falls, South Dakota

Cause Description:
Here at Sanford Research, we are committed to finding cures and advancing therapies into rare diseases. To further this mission, we established the Coordination of Rare Diseases at Sanford (CoRDS) – a national rare disease registry designed to accelerate research into these rare conditions. CoRDS collects and stores basic contact and clinical information on individuals of any age who have been diagnosed with a rare disease (undiagnosed individuals are also eligible for enrollment). Goal To collaborate efforts with rare disease patient advocacy organizations, healthcare providers, researchers, and individuals to create a central resource that connects scientists conducting research studies with individuals interested in participating in the clinical trial or research study.

Type: Human/ Social Services
Listed on iGive since: June 2012
iGive members supporting: 1

Website: http://www.sanfordresearch.org/cords/

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